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<dc:title xml:lang="fr">Quantification de la santé en France : enjeux de gouvernance et dynamiques d'autonomie individuelle</dc:title>
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<dc:subject xml:lang="fr">Données de santé</dc:subject>
<dc:subject xml:lang="fr">Quantification de la santé</dc:subject>
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<dc:subject xml:lang="fr">Capital santé</dc:subject>
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<dc:subject xml:lang="fr">Marketing de la santé</dc:subject>
<dc:subject xml:lang="fr">Numérique en santé</dc:subject>
<dc:subject xml:lang="en">Health data</dc:subject>
<dc:subject xml:lang="en">Health quantification</dc:subject>
<dc:subject xml:lang="en">Governance</dc:subject>
<dc:subject xml:lang="en">Health capital</dc:subject>
<dc:subject xml:lang="en">Hysteresis</dc:subject>
<dc:subject xml:lang="en">Individual autonomy</dc:subject>
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<dcterms:abstract xml:lang="fr">Notre recherche analyse les transformations contemporaines du système de santé français à travers l’accélération et la massification de la collecte et de l’usage des données de santé. Inscrite dans une approche qualitative et constructiviste en marketing de la santé et en études critiques de la consommation, elle examine la manière dont la quantification reconfigure les modes de gouvernance, les logiques organisationnelles et les expériences vécues des individus. Le cadre théorique mobilise la sociologie de la quantification, la notion de capital santé inspirée des travaux de Pierre Bourdieu, ainsi que le concept d’hystérèse, afin d’éclairer les décalages entre dispositifs institutionnels, pratiques organisationnelles et usages individuels. Le dispositif méthodologique repose sur une triangulation de données combinant entretiens semi-directifs, analyse documentaire institutionnelle et réglementaire, et étude des discours médiatiques et socionumériques. Les résultats mettent en évidence des tensions durables entre injonctions à l’autonomie, logiques de performance, stratégies de valorisation des données et exigences de protection. Ils montrent que la quantification de la santé produit des expériences différenciées et contribue à la recomposition des rapports entre institutions, organisations et individus. Cette thèse propose ainsi une lecture intégrée du marché des données de santé en France et de ses implications sociétales, organisationnelles et managériales.</dcterms:abstract>
<dcterms:abstract xml:lang="en">This dissertation examines contemporary transformations in the French healthcare system through the acceleration and massification of health data collection and use. Adopting a qualitative and constructivist approach grounded in health marketing and critical consumer studies, it explores how health quantification reshapes governance arrangements, organizational dynamics, and individuals’ lived experiences. The theoretical framework draws on the sociology of quantification, the notion of health capital inspired by Bourdieu, and the concept of hysteresis to account for misalignments between institutional arrangements, organizational practices, and individual uses of health data. Methodologically, the study relies on a qualitative multi-level design combining semi-structured interviews, institutional and regulatory document analysis, and the examination of media and socio- digital discourses. The findings reveal persistent tensions between empowerment narratives, performance-driven logics, data valorization strategies, and data protection requirements. They show that health quantification contributes to differentiated experiences and to the reconfiguration of relationships between institutions, organizations, and individuals. Overall, the dissertation offers an integrated understanding of the French health data market and its societal, organizational, and managerial implications.</dcterms:abstract>
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